What Is Team Gleason Trying to Do
Help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services.
The Team Gleason House is only the second of its kind in the nation. The residence is equipped with the latest computer-operated technology to allow individuals with ALS the most amount of independence possible. Residents are able to open doors, turn up or down their bedroom shades, or call for the elevator - all with help ... Read More
What Is Team Gleason Trying to Do
Help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services.
The Team Gleason House is only the second of its kind in the nation. The residence is equipped with the latest computer-operated technology to allow individuals with ALS the most amount of independence possible. Residents are able to open doors, turn up or down their bedroom shades, or call for the elevator - all with help of a computer and a sensor that tracks head/eye movement for instruction.
Team Gleason assists in either the facilitation or purchase of technology or equipment for those living with ALS. ALS costs patients roughly $260,000 per year to live with the disease. This often leaves patients without the ability to afford simply communication devices and especially assistive technology included in the Team Gleason House.
To create a global conversation about ALS to ultimately find solutions and an end to the disease.
An estimated 30,000+ Americans currently have ALS. The numbers seem low annually, because so many people who have ALS choose to not continue living through assisted means. Every day, 15 people are diagnosed with ALS. Itʼs estimated that 90% of the public does not know what ALS is or does. ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries. ALS can strike anyone. Every single American is threatened by this disease. Although, strikingly, veterans and especially Gulf War veterans are being diagnosed at an alarming rate. By creating a conversation about ALS through a national awareness campaign, we hope to align ourselves with strategic partners who can help encourage expanded research.
To raise public awareness toward ALS by providing and documenting extraordinary life adventures for individuals with muscular diseases or injuries.
As an adventurer, Steve wanted to continue pursuing life adventures for himself despite his diagnosis and found that many people with ALS were choosing to accept their assumed limitations. Through Steveʼs inspiration, we have found and are finding more people with ALS (pALS) who want to experience their own life adventures. Team Gleason has made this possible for a number of people and will continue to do so.
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